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Parent Project Muscular Dystrophy Returns to Baltimore for Annual Connect Conference; Presenters Include FDA, Major Pharma
Date:6/24/2013

HACKENSACK, N.J., June 24, 2013 /PRNewswire-USNewswire/ -- Parent Project Muscular Dystrophy (PPMD) will return to Baltimore for their Annual Connect Conference, the largest, most comprehensive annual, international conference focused entirely on Duchenne muscular dystrophy (Duchenne), June 27 – 30, 2013.

Researchers, scientists, and Duchenne experts from around the world travel to the Connect Conference every year to share with families the latest in muscular dystrophy research and care. This year's agenda boasts 56 presentations by over 85 Duchenne experts and 11 industry partners, including GSK, Prosensa, Sarepta Therapeutics, and PTC Therapeutics.  

In addition to extensive presentations regarding clinical research in Duchenne and the latest updates on care, PPMD will outline their comprehensive advocacy strategy. In April, PPMD released Putting Patients First, a white paper outlining recommendations to speed responsible access to new therapies for Duchenne and other, rare, serious, and life-threatening neurological disorders. PPMD plans to update the community on the ongoing dissemination of this white paper and the continued quest for accelerated approval from federal agencies. Other advocacy highlights include Robert Temple, MD, Deputy Director for Clinical Science from the U.S. Food and Drug Administration (FDA) and Marielena McGuire, PhD from the Department of Defense
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SOURCE Parent Project Muscular Dystrophy
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