Navigation Links
Shriners Hospitals for Children Announces 2017 - 2018 National Patient Ambassadors in Daytona Beach
Date:7/14/2017

Every year, Shriners Hospitals for Children® selects two National Patient Ambassadors to represent the health care system’s patients. The ambassadors spend the year telling their stories of perseverance in the face of adversity and the ways Shriners Hospitals for Children has made a dramatic, life-changing difference in their lives. The new national patient ambassadors were introduced during the premiere of their documentary called ‘Free to be Me’ as part of Shriners International’s annual convention, known as Imperial Session.

Here are just a few highlights of their amazing stories:

Isabella Rose
From birth, Isabella had difficulty feeding and sleeping. Her parents, Roselyne and Tim, went from doctor to doctor seeking answers, but no one could identify a cause. As she grew, her parents became convinced that something was seriously wrong. Isabella’s speech sounded like she was whistling and she had ear and sinus infections constantly.

Searching for Answers
For five years, Roselyne and Tim sought answers for their little girl but continued to be unable to obtain even a cause or a diagnosis. Some professionals thought Emily was cognitively impaired; others thought she was deaf. One day a family friend in the Chicago area heard about the issues Isabella was facing and suggested the family apply for treatment for Isabella at Shriners Hospitals for Children — Chicago. The family did not know at the time that their friend Dick Anderson was a member of Medinah Shriners and, at the time, Chairman of the Board of Governors of the Shriners Hospital in Chicago. Anderson was glad to be of help. He has said that helping Isabella and her family find the help they needed was life-changing, and that he wished all the Shriners understood the impact they can have on the health care system’s patients and families.

At their first appointment, an interdisciplinary team of professionals assessed Isabella and, within minutes, provided a diagnosis. Isabella had a submucous cleft palate, a form of cleft palate that is not easily identifiable, as the palate is covered by a thin membrane. “It felt like the whole world came down on us; we finally knew the diagnosis,” said Roselyne. Isabella was scheduled for surgery to repair the cleft and subsequently received speech therapy for two years.

Finding Her Own Voice
Isabella, now 14, lives in Florida with her family. She has gone from struggling to be understood to becoming a gifted vocalist, and hopes to perform professionally one day. Isabella volunteers at a local veterinary hospital, pet sits and babysits. She enjoys painting, poetry and outdoor activities. She also actively seeks ways to give back to Shriners Hospitals for Children.

Emily Mellish
Emily’s mother, Joy, did not experience significant issues during pregnancy, but moments after Emily was born, that changed. Emily was rushed by ambulance to a hospital in a larger city only hours after birth, and spent her first two weeks in the NICU, where doctors gave her a complete assessment.

Emily was born with spina bifida, as well as severe scoliosis (missing eight ribs on her left side) a leg-length discrepancy, additional orthopaedic conditions, bladder and kidney problems and other issues.

When she was 6 weeks old, Emily had surgery to close the defect over her spinal cord. The following day, a long list of serious complications began, keeping her in the hospital for 28 days. During this time, the Mellishes learned about Shriners Hospitals for Children from a close friend. “It was comforting to know that even before I needed to worry about a place to take her orthopaedically, that someone had come forward and said there was a place where Emily would be taken care of,” said Joy.

Finding the Right Team
Emily was first seen at Shriners Hospitals for Children – Erie when she was approximately 6 months old. There, she has undergone several surgeries. Other surgeries, including a VEPTR (Vertical Expandable Prosthetic Titanium Rib) procedure, which stabilizes the spinal curve and levels growth, were done through a collaboration between Shriners Hospitals for Children and Children’s Hospital of Pittsburg. Emily has also been seen at Shriners Hospitals for Children — Philadelphia, where external fixators were used to straighten Emily’s leg at the knee, and increase leg length.

After this, she was able to ride a bicycle for the very first time. Emily always amazes her doctors with her “no limits” attitude.

Giving Back with Beads for Needs
Today, Emily is an energetic and sociable 11-year-old. She loves dancing, swimming, painting pottery and public speaking. In 2012, she started Beads for Need, a foundation dedicated to raising funds for Shriners Hospitals for Children through bracelet and photograph print sales, and has raised more than $80,000 Shriners Hospitals for Children – Erie. Without Shriners Hospitals for Children Emily would not be Emily, she would be forced into a box,” said Joy. “With Shriners Hospitals there are no limits to what she can do.”

To learn more about Isabella and Emily, please visit: shrinershospitalsforchildren.org/Media-resources or
http://www.youtube.com/shrinershospitals

Read the full story at http://www.prweb.com/releases/2017/07/prweb14510612.htm.


'/>"/>
Source: PRWeb
Copyright©2017 Vocus, Inc.
All rights reserved


Related medicine news :

1. Shriners and Masons Children's Day at The Boulevard Las Vegas - Complimentary Child ID and Medical Screenings
2. 2nd Annual Toy Ride to Benefit Shriners Hospitals for Children® — Los Angeles Patients and Families
3. Santa Makes Cyber-Stop to Shriners Hospitals for Children® — Los Angeles for the Holidays
4. Shriners Hospitals for Children Invites Patients to Race to Adventure at the 2016 Rose Parade
5. Houston to Host 141st Imperial Session of Shriners International
6. Shriners Hospitals for Children - Lexington Announces Plan to Build New $47 Million Facility
7. Ranked #1 for Babies and Top 10 Overall, Children’s National Health System Earns National Recognition in U.S. News & World Report 2017-18 Best Children’s Hospitals Survey
8. Allegheny General, Jefferson & Saint Vincent Hospitals Receive Accolades for Cardiac Programs
9. Hospitals Come Together to Fight Opioid Crisis in Cuyahoga County
10. Becker's Hospital Review Names 100 Great Community Hospitals in 2017
11. Two Quorum Health Resources Client Hospitals Recognized as Top Hospitals for Patient Experience
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/25/2017)... ... ... Facing medical needs with a newborn boy this spring, Crowley Maritime ... for employees that is uncommon in American business: 12 weeks of fully paid parental ... employees as new parents. It keeps our family life more stable. I can be ...
(Date:7/24/2017)... ... July 24, 2017 , ... ... kklaproth(at)robinsmorton(dot)com , Robins & Morton, Perkins Will, Newcomb & Boyd, Walter P ... of the new Destination Medical Building located at Mayo Clinic in Jacksonville, ...
(Date:7/24/2017)... (PRWEB) , ... July 24, 2017 , ... ... the federal Substance Abuse and Mental Health Services Administration’s (SAMHSA) State Targeted Response ... California Department of Health Care Services, will facilitate the development of a hub ...
(Date:7/24/2017)... ... July 24, 2017 , ... The International Essential Tremor Foundation (IETF) will ... essential tremor (ET). The seminar will take place on Saturday, Aug. 26 at the ... The program will run from 9 a.m. to 12 p.m., with check-in beginning at ...
(Date:7/24/2017)... ... July 24, 2017 , ... ... that already work hand-in-hand on an Innovation Collaboration program, have signed a five-year ... experience and cost of the care members and patients receive. The agreement also ...
Breaking Medicine News(10 mins):
(Date:7/21/2017)... RESEARCH TRIANGLE PARK, N.C. , July 21, ... UTHR ) announced today that it will report its ... on Thursday, July 27, 2017. ... Thursday, July 27, 2017, at 9:00 a.m. Eastern Time.  ... callers dialing 1-970-315-0533.  A rebroadcast of the teleconference will ...
(Date:7/19/2017)... , July 19, 2017  Mako Medical Laboratories ... and the Military Family Assistance Fund (MFA) to bring ... to visit with their families one last time ... to coordinate the travel and logistics needed for these ... deployed soldiers and their families. We just wish we ...
(Date:7/14/2017)... It should come as no surprise to anyone that ... of a crippling opioid epidemic. According to the Center ... deaths from opiate-based medications has quadrupled, Says, Dr. David ... 2001 to 2015". During this time, the prescription rate for ... a compelling link between prescription and eventual addiction. The problem ...
Breaking Medicine Technology: