Navigation Links
Many “Firsts” for the 26th Annual FSHD International Research Congress
Date:6/19/2019

The FSH Society announced the opening today of its 26th annual International Research Congress (IRC) in Marseille, France. The conference is widely seen as the premier global platform for the discussion and dissemination of state-of-the-art research on facioscapulohumeral muscular dystrophy (FSHD). Nearly 200 researchers, clinicians, industry representatives and patient advocates are attending.

Researchers who have networked at this yearly gathering since 1994 have helped to drive fundamental discoveries, with a broad consensus on a “central hypothesis” of the genetic basis of FSHD, development of cellular and animal models, identification of therapeutic targets, and a flowering of ideas for treating FSHD. The field is nearing the completion of a Phase 2 clinical trial of a myostatin inhibitor, and the first disease-modifying therapy for FSHD is expected to go into a Phase 2 trial later this year.

Many aspects of this year’s conference signal the rapid maturation of the field. The Congress is being held for the first time in Europe, to reflect the major contributions of European centers of excellence in FSHD. To keep pace with the expansion of FSHD research, this meeting has been extended from one day to two full days.

The program committee made special efforts to attract clinical researchers, as advancement of drug development brings greater urgency to improving the understanding of the clinical features of FSHD, genotype-phenotype correlations, natural history, and evaluation of disease progression. As a result, the number of attendees and scientific presentations has grown by 50 percent.

“With the recent advances in FSHD studies now including large sets of data, greater availability of biomaterials from multiple large research initiatives, and the rapid approach of more clinical trials,” the program committee noted, “the FSHD International Research Congress serves a more important role than ever: to ensure dissemination of the latest ideas and discussion of the field’s needs and priorities, combined with collaboration and coordination, to speed up progress toward delivering effective treatments to our patients and families.”

About the FSH Society
The FSH Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. The Society has catalyzed major advancements and is accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSH Society has transformed the landscape for FSHD research and is committed to making sure that no one faces this disease alone. The Society offers a community of support, news, and information through its website at https://www.fshsociety.org.

Read the full story at https://www.prweb.com/releases/many_firsts_for_the_26th_annual_fshd_international_research_congress/prweb16382317.htm.


'/>"/>
Source: PRWeb
Copyright©2019 Vocus, Inc.
All rights reserved


Related medicine news :

1. The Stevie Awards Announces the Advisory Board for Second Annual Women
2. Future Conference
3. Caravan Health Seeking Speaker Proposals for Fourth Annual Accountable Care Symposium
4. Villa Healthcare Earns 2nd Annual Great Place to Work® Certification
5. Moreno Ranches, an Industry-Leading Ranch Offering Brahman Bulls for Sale in Texas and Florida, Announces Successful 10th Annual "Magic City" Sale
6. Aladtec Team Attending 32nd Annual NADONA Conference in Las Vegas
7. American Academy of Thermology (AAT) Releases Full Agenda for 2019 Annual Meeting & Scientific Session Sep. 7-8 in Atlanta, GA
8. NCPDP Announces Highlights from its 2019 Annual Conference, Dare to Disrupt
9. The Plantrician Project Announces Oakland, California as Host City for Seventh Annual International Plant-Based Nutrition Healthcare Conference
10. Operation Homefront and GNC Kick-Off 2nd Annual Live Well & Serve America’s Military Families Campaign
11. Patient-Centric Workshop to be Presented by Catalent at Global Clinical Supplies Group Annual US Conference
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/23/2019)... (PRWEB) , ... July 23, 2019 , ... ... on addressing unmet needs in the field of urology, today announced that Bradley ... UroLift® Center of Excellence. The designation recognizes that Dr. Wilson has achieved a ...
(Date:7/23/2019)... ... 23, 2019 , ... The National Oncology State Network (NOSN) ... representing: Alabama, Alaska, California, Connecticut, Georgia, Hawaii, Illinois, Maryland, Michigan, Mississippi, New Jersey, ... of NOSN’s 2018 accomplishments starting with the status of Cancer Caucuses in various ...
(Date:7/23/2019)... BEACH, Fla. (PRWEB) , ... July 23, 2019 , ... Jason Patton, Florida-based Firefighter, Fire ... body and mind to climb 110 flights of stairs for the San Antonio 110 ... event is a memorial to the 343 fallen firefighters who lost their lives in the ...
(Date:7/21/2019)... N.J. (PRWEB) , ... July 20, 2019 , ... Board ... NJ Top Docs for 2019. Dr. Glatt, a Fellow of the American College of ... York. He is also currently a member of the American Society of Plastic Surgery ...
(Date:7/19/2019)... ... July 19, 2019 , ... ... hiring of Megan Clem as Senior Director of Education Strategy. Clem has extensive ... , “Having worked globally with physician experts on comprehensive educational programming, Megan brings ...
Breaking Medicine News(10 mins):
(Date:7/19/2019)... ... July 19, 2019 , ... The Academy ... named Jorge Bacigalupo Director of Education Strategy. , Bacigalupo joins AGILE during ... on six continents and in ten languages. AGILE has an extensive network of ...
(Date:7/18/2019)... WEST GROVE, Pa. (PRWEB) , ... July 18, 2019 , ... ... with the Bushel and Berry Collection of homegrown edible berry bushes. , ... bring beauty and healthy, delicious fruit to any garden or on the patio in ...
(Date:7/17/2019)... ... July 17, 2019 , ... Highmark Health, Allegheny Health Network (AHN) and ... the region to announce plans for what will be one of the largest health ... State Avenue and adjacent to the Montour Trail, the complex is being developed by ...
Breaking Medicine Technology: