Navigation Links
How to boost Hispanics' participation in clinical trials? Relate to them, Moffitt study shows
Date:6/26/2013

Hispanic cancer patients rarely participate in clinical trials, but researchers want to tailor a Spanish DVD to help change this. To create a relevant educational tool, Moffitt Cancer Center researchers investigated why awareness of and participation in trials are so low in this population.

Using focus groups with 36 Spanish-speaking cancer survivors from Tampa and Puerto Rico, researchers found that a language barrier, as well as a cultural idea that only doctors, not patients, guide treatment decisions, may help account for low participation rates.

Looking for ways to improve knowledge and participation for Hispanic patients, the researchers used feedback from the focus groups to help develop a Spanish booklet and video to educate and empower patients to participate in treatment decisions.

The study was published online in May by the Journal of Health Communication: International Perspectives.

The 45.5 million Hispanics living in the United States are the nation's fastest growing ethnic group, and there is a need to develop health care educational materials that target their language and culture. These educational materials should not be merely translated from English, the researchers said, but should be adapted to meet the group's informational needs in a culturally appropriate way.

"We found that Hispanic patients who prefer information in Spanish had different informational needs and concerns than non-Hispanic patients," said study lead author Gwendolyn P. Quinn, Ph.D., scientific director of the Survey Methods Core Facility and member of the Health Outcomes and Behavior Program at Moffitt. "Keeping that in mind, we developed educational materials using a social marketing approach, which targets a specific audience instead of creating a generic product for everyone. This approach increases the chances a patient may relate to the material, making their behavior change more likely."

The social marketing intervention in this study was aimed at increasing clinical trial participation by Hispanic patients. However, the researchers found several examples of culturally based ideas that may have kept patients from enrolling in a clinical trial. For example, there was confusion among Hispanic patients over why a doctor would ask them to make a treatment decision, such as participating in a clinical trial. The prevailing cultural idea, they found, was that Hispanic patients had a core belief that the doctor will tell them what to do. Also in Hispanic culture, the patient relies on his or her family to help make health care decisions.

Their research shows a need to present culturally tailored information for specific audiences. The researchers are using the Spanish video and booklet in a randomized clinical trial to evaluate the effectiveness in improving the clinical trials perceptions of Spanish-speaking cancer patients.

"We feel the educational materials we developed will empower Hispanic patients by improving their capacity to make health care decisions, such as enrolling in a clinical trial," explained Quinn. "They may say no, but they will be prepared with knowledge about the purpose of clinical trials and will not be making an uninformed decision."


'/>"/>

Contact: Kim Polacek
kim.polacek@moffitt.org
813-745-7408
H. Lee Moffitt Cancer Center & Research Institute
Source:Eurekalert

Related medicine news :

1. Teen Drinking May Boost Odds of Precancerous Breast Changes
2. Common Plastics Chemical Might Boost Diabetes Risk
3. Live imaging shows response to cancer drugs can be boosted by altering tumor microenvironment
4. Letting go can boost quality of life
5. Gatekeeper of brain steroid signals boosts emotional resilience to stress
6. Strength Training May Give Boost to Seniors Brains
7. Exercise Plus Computer Time May Boost Seniors Brains
8. Exercise May Boost Survival in Breast, Colon Cancer Patients
9. A*STAR scientists discover switch to boost anti-viral response to fight infectious diseases
10. Email Vacations Boost Job Productivity, Lower Stress: Study
11. Chronic Heartburn May Boost Risk for Esophageal Cancer
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:6/24/2016)... , ... June 24, 2016 , ... ... and Scientific Sessions in Dallas that it will receive two significant new grants ... grants came as PHA marked its 25th anniversary by recognizing patients, medical professionals ...
(Date:6/24/2016)... ... 24, 2016 , ... Dr. Amanda Cheng, an orthodontist ... has extensive experience with all areas of orthodontics, including robotic Suresmile technology, ... , Micro-osteoperforation is a revolutionary adjunct to orthodontic treatment. It can be used ...
(Date:6/24/2016)... ... June 24, 2016 , ... Topical BioMedics, Inc, makers of Topricin and MyPainAway Pain ... for a minimum wage raise to $12 an hour by 2020 and then adjusting it ... the lost value of the minimum wage, assure the wage floor does not erode again, ...
(Date:6/24/2016)... , ... June 24, 2016 , ... ... at the Clinical Decision Making in Emergency Medicine conference in Ponte Vedra Beach, ... journal articles published in Emergency Medicine Practice and Pediatric Emergency Medicine ...
(Date:6/24/2016)... ... June 24, 2016 , ... Puradigm® ... Group (TGIG), has initiated cultivation and processing operations at its production facility, and ... Nevada. , Puradigm is the manufacturer of a complete system of proactive air ...
Breaking Medicine News(10 mins):
(Date:6/23/2016)... 2016 Roche (SIX: RO, ROG; OTCQX: RHHBY) ... Elecsys BRAHMS PCT (procalcitonin) assay as a dedicated testing ... With this clearance, Roche is the first IVD company ... for sepsis risk assessment and management. PCT ... PCT levels in blood can aid clinicians in assessing ...
(Date:6/23/2016)... 23, 2016 Research and Markets has ... 52" report to their offering. ... creates a favourable commercial environment for MedImmune to enter. The ... that will serve to drive considerable growth for effective anti-influenza ... to cap sales considerably, but development is still in its ...
(Date:6/23/2016)... INDIANAPOLIS , June 23, 2016 ... Tomorrow,s Leaders Scholarship is any indication, the future is ... online at www.diabetesscholars.org by the Diabetes Scholars ... in the way of academic and community service excellence. ... program since 2012, and continues to advocate for people ...
Breaking Medicine Technology: