Chicago, IL (PRWEB) October 02, 2013
Bcureful®—a non-profit organization whose mission is to accelerate research towards a cure for Tuberous Sclerosis Complex (TSC)—presented its inaugural donation in the amount of $20,000.00 to launch the new Tuberous Sclerosis Complex Center at Ann & Robert H. Lurie Children’s Hospital of Chicago.
Lurie Children’s is considered one of the top children’s hospitals in the country and is a recognized leader in pediatric patient care, research, education and advocacy. Bcureful Founder and Chair Julie Scroggins and Bcureful Board member Lori Nerheim presented the check to Dr. Douglas R. Nordli, Jr. who heads the Epilepsy Center of Excellence and Dr. Srishti Nangia who will lead the new TSC Center.
This exciting project, under the direction of Dr. Nordli and his colleague Dr. Nangia, will establish a high-quality, multi-disciplinary clinic that will improve access and quality of care for TSC patients and their families throughout the Midwest. They have an outstanding team across all the various subspecialties already assembled and plan to have the program piloted by the end of the year.
Dr. Nangia explained, “Tuberous Sclerosis Complex (TSC) is a genetic disorder that involves multiple organ systems and potentially can cause serious medical issues. Fortunately, new diagnostic techniques and therapeutic advances bring the promise of improved outcomes. We have an excellent team of experts in multiple subspecialties at Ann & Robert H. Lurie Children’s Hospital of Chicago but up to now our families have faced the challenge of juggling multiple physician visits per year while sometimes traveling long distances to receive their care. The multidisciplinary TSC clinic will allow us to provide comprehensive care in a much more efficient manner and will pave the way for new clinical trials.”
Bcureful Founder Julie Scroggins added, “We are extremely honored to pre
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