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National Multiple System Atrophy Letter Writing Day
Date:3/28/2013

e System Atrophy Awareness Month and October 3rd as World MSA Day. About Multiple System Atrophy

MSA is a rare and fatal disorder with less than 15,000 Americans diagnosed and 35,000 undiagnosed at any given time. According to the National Institutes of Health, "Multiple system atrophy is a progressive neurodegenerative disorder characterized by symptoms of autonomic nervous system failure such as fainting spells and bladder control problems (neurogenic orthostatic hypotension), combined with motor control symptoms such as tremor, rigidity, and loss of muscle coordination. MSA affects both men and women primarily in their 50s. MSA tends to advance rapidly over the course of nine to 10 years, with progressive loss of motor skills, eventual confinement to bed, and death. There is no remission from the disease. There is currently no cure is available."

About The Multiple System Atrophy Coalition

The MSA Coalition, formerly the SDS/MSA Support Group changed its name on March 1, 2013 in order to better reflect its mission as a 501(c)3 charitable organization representing the multiple system atrophy community. Started as a patient/caregiver support group nearly 25 years ago, the MSA Coalition now has a four-pillar mission:

  •     Supporting patients and caregivers affected by multiple system atrophy
  •     Educating patients, caregivers and healthcare professionals
  •     Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA
  •     Advocating for issues important to the MSA community, including creating greater awareness
For more information or to donate to The MSA Coalition, please visit: http://www.MultipleSystemAtrophy.
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