Navigation Links
National Multiple System Atrophy Letter Writing Day
Date:3/28/2013

Advocates (RDLA) website. The RDLA has established an Action Alert portal specifically for the multiple system atrophy community. The portal makes it easy for constituents to identify their members of Congress and to compose an effective letter. Really, all we need is for as many people from the MSA community as possible to log on and tell their story. The rest is already done.”

The Multiple System Atrophy Letter campaign is important for three key reasons:

  •     It is devastating for those with MSA to have the NIH lose its rare disease research funding. Because MSA is so rare, government money for research is critical. No big celebrities are known to have MSA, so it remains an obscure disease dependent on grass roots funding from it own patient base. Unfortunately, MSA can have a devastating financial impact on families making it difficult to donate large sums of money.
  •     Approval of orphan drugs by the FDA remains a slow and uncertain process, which is a true disincentive for pharmaceutical/biotech investors and companies to back orphan drug research. As MSA is one of more than 6,500 rare diseases without a cure, seeing a clear and faster path for orphan drug approvals by the FDA is critical to millions of Americans. As such, it is important for Congress to ensure that the FDA efficiently implement orphan drug legislation passed last year as part of FDA Safety and Innovation act.
  •     Members of Congress should join the rare disease caucus to demonstrate support of so many of their constituents with rare diseases and recognize via resolutions important dates for the MSA community, March as Multipl
    '/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2 3 4

Related biology technology :

1. US Radiopharmaceuticals (USR) Awards Contract to Von Gahlen International for New Technetium-99m Generator Production Line Using Low Enriched Uranium Molybdenum-99
2. National Brain Tumor Society Announces Launch of Defeat GBM Research Collaborative
3. Atlantica Group LLC to Support International "Soft-Landing" Efforts of Incubators and Accelerators
4. TaxOps Announces Partner Appointment to Prominent International Position with Fortune 100 Company
5. SRI International Licenses Bed Bug Detection Technology to Redcoat, a Virginia-Based Start-Up Company
6. Alliance to Feed the Future Congratulates Our Farmers, Supports Education for Future Generations on National Agriculture Day
7. SOTIO a.s. Appoints Chiltern International
8. American Farmer Recognizes and Celebrates National Agriculture Day
9. Regeneron Pharmaceuticals’ Industrial Operations & Product Supply Site Receives International Recognition for Operational Excellence
10. Pi Day is coming March 14! National Pi Day Celebrates Education and its Importance in All Our Lives
11. La Société Internationale dUrologie lanza la SIU Academy, un nuevo recurso para urólogos
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:7/29/2015)... Ala., July 29, 2015  HealthSouth ... nation,s largest providers of post-acute healthcare services, offering ... its results of operations for the second quarter ... quarter was characterized by strong volume growth in ... Adjusted EBITDA," said Jay Grinney, President and Chief ...
(Date:7/29/2015)... Station, TX (PRWEB) , ... July 29, 2015 ... ... POD® designer, manufacturer and supplier, announces the launch of their 2nd generation cell ... to the current miniPOD CT, but it also represents a new POD® design. ...
(Date:7/29/2015)... , ... July 29, 2015 , ... ... today announced its GHS Label Guide . To align chemical container labeling ... this guide includes explanations of label components, an example of an accurate label, ...
(Date:7/29/2015)... NEW YORK , July 29, 2015 /PRNewswire/ ... neuropathology testing, announces increased partnerships with VA and ... offers Epidermal Nerve Fiber Density (ENFD) and Sweat ... of small fiber neuropathy ( https://therapath.com/skin ). ... Epidermal Nerve Fiber Density (ENFD) on punch skin ...
Breaking Biology Technology:HealthSouth Reports Results for Second Quarter 2015 2HealthSouth Reports Results for Second Quarter 2015 3HealthSouth Reports Results for Second Quarter 2015 4HealthSouth Reports Results for Second Quarter 2015 5HealthSouth Reports Results for Second Quarter 2015 6HealthSouth Reports Results for Second Quarter 2015 7HealthSouth Reports Results for Second Quarter 2015 8HealthSouth Reports Results for Second Quarter 2015 9HealthSouth Reports Results for Second Quarter 2015 10HealthSouth Reports Results for Second Quarter 2015 11HealthSouth Reports Results for Second Quarter 2015 12HealthSouth Reports Results for Second Quarter 2015 13HealthSouth Reports Results for Second Quarter 2015 14HealthSouth Reports Results for Second Quarter 2015 15HealthSouth Reports Results for Second Quarter 2015 16HealthSouth Reports Results for Second Quarter 2015 17HealthSouth Reports Results for Second Quarter 2015 18HealthSouth Reports Results for Second Quarter 2015 19HealthSouth Reports Results for Second Quarter 2015 20HealthSouth Reports Results for Second Quarter 2015 21HealthSouth Reports Results for Second Quarter 2015 22HealthSouth Reports Results for Second Quarter 2015 23HealthSouth Reports Results for Second Quarter 2015 24HealthSouth Reports Results for Second Quarter 2015 25HealthSouth Reports Results for Second Quarter 2015 26HealthSouth Reports Results for Second Quarter 2015 27HealthSouth Reports Results for Second Quarter 2015 28HealthSouth Reports Results for Second Quarter 2015 29HealthSouth Reports Results for Second Quarter 2015 30HealthSouth Reports Results for Second Quarter 2015 31HealthSouth Reports Results for Second Quarter 2015 32HealthSouth Reports Results for Second Quarter 2015 33HealthSouth Reports Results for Second Quarter 2015 34HealthSouth Reports Results for Second Quarter 2015 35HealthSouth Reports Results for Second Quarter 2015 36
... Aug. 24 ACCESS PHARMACEUTICALS, INC. (OTC ... specializing in products for cancer and supportive care, announced ... Zarzycki will give an invited presentation today on the ... held at the American Chemical Society,s ("ACS") ...
... in French . , The generation of an ... is known as the piezoelectric effect, and it has a ... watches, motion sensors and precise positioning systems. Researchers at McGill ... this effect in nanoscale semiconductors called "quantum dots," enabling the ...
... ORANGEBURG, S.C., Aug. 23 Zeus, Inc., a global ... it is now publishing its catalog in 6 languages: ... also increased its number of bilingual Technical Account Managers ... in Asia. All six catalogs are available for download ...
Cached Biology Technology:Access Pharmaceuticals Presents at American Chemical Society Annual Fall Meeting in Boston, MA 2Access Pharmaceuticals Presents at American Chemical Society Annual Fall Meeting in Boston, MA 3Access Pharmaceuticals Presents at American Chemical Society Annual Fall Meeting in Boston, MA 4Good vibrations: New atom-scale products on horizon 2Zeus Catalog Available in Six Languages 2
(Date:7/31/2015)... 2015 A 10 a. Conferência Internacional ... BGI de 22-25 de outubro de 2015, em ... está celebrando seu 10 o. aniversário este ano. Desde ... das reuniões mais influentes do mundo no ramo das ... e prazerosos. A ICG-10 se concentra ...
(Date:7/31/2015)... Die 10. internationale Konferenz zu Genomik (ICG-10, ... vom 22. bis 25. Oktober 2015 in ... Die Konferenz feiert in diesem Jahr ihr ... ICG weltweit zu einem der einflussreichsten jährlichen Treffen ... dynamischsten, enthusiastischsten und angenehmsten wissenschaftlichen Zusammentreffen. ...
(Date:7/30/2015)... , July 30, 2015 Cellecta, Inc., ... gene function analysis and biomarker discovery, announced the ... Knockout Library targeting all human protein coding genes. ... "knock out" a gene,s function. Cellecta,s new Human ... throughput screening tool so that researchers can investigate ...
Breaking Biology News(10 mins):A 10a. Conferência Internacional sobre Genômica (ICG-10) será em outubro 2A 10a. Conferência Internacional sobre Genômica (ICG-10) será em outubro 3Die 10. internationale Konferenz zu Genomik (ICG-10) beginnt im Oktober 2Die 10. internationale Konferenz zu Genomik (ICG-10) beginnt im Oktober 3CELLECTA, INC. Announces Launch of Human Whole Genome CRISPR Knockout Library 2
... the Vikings is still coursing through the veins of men ... a new study which has been just published. Focusing ... of 100 men, whose surnames were in existence as far ... of their DNA is specifically linked to Scandinavian ancestry. ...
... Jolla, CA Controlled by a tightly regulated choreography that ... develop along a polar axis with a root on one end ... a defective TOPLESS gene causes plant embryos to develop into a ... leaves, researchers at the Salk Institute for Biological Studies hit upon ...
... light by making a rare form of chlorophyll (chlorophyll ... team of researchers who recently sequenced the bacterias genome. ... Washington University, St. Louis, report in the current online ... Academy of Sciences, that they have sequenced the genome ...
Cached Biology News:Unravelling the Northwest's Viking past 2Root or shoot? EAR calls the shots 2Researchers decode genetics of rare photosynthetic bacterium 2Researchers decode genetics of rare photosynthetic bacterium 3
... Disposable. Virgin, optically clear polystyrene ... and alphanumeric coordinates for cell counting. ... number is a new product number, ... number. If showing no availability yet, ...
... system uses two Adept CE 4100 high ... 4200 dual wavelength detector for added flexibility. ... PowerStream data processing software and interface unit, CE ... The supplied analytical pumps may be substituted by ...
... may be carried out using this high ... attention. System control and data processing is ... The elegant, powerful and very easy to ... 98 and 2000., The supplied automatic sample injector ...
... routine binary separations. Excellent detection is provided ... variable wavelength detector. Ultra-fine control of the ... highly accurate and precise, high pressure dual piston ... may be plotted on a printer or an ...
Biology Products: