Navigation Links
National Multiple System Atrophy Letter Writing Day
Date:3/28/2013

Raleigh, NC (PRWEB) March 28, 2013

The Multiple System Atrophy Coalition (formerly the SDS/MSA Support Group) is sponsoring a national letter-writing day for those impacted by multiple system atrophy (MSA). The campaign, which will take place on March 28, will target letters to both houses of Congress and to the President of the United States. The goal is to educate elected officials on the devastating impact of multiple system atrophy on the lives of patients, caregivers and their families, and to ask Congress to:

  •     Join the rare disease caucus
  •     Fight for better funding of the NIH in support of rare disease research
  •     Urge the FDA to more efficiently approve orphan drugs
  •     Recognize March as Multiple System Atrophy Awareness Month and October 3rd as World MSA Day

“MSA is a rare and fatal disorder,” stated Judy Biedenharn, co-President of The MSA Coalition. “There are fewer than 15,000 Americans currently diagnosed with this disease and perhaps another 35,000 have yet to be diagnosed. As such, it is critical that the MSA community band together to make our collective voice heard. We need Congress to support rare disease causes as approximately 7,000 rare diseases affect more than 30 million Americans. Like too many rare diseases, multiple system atrophy has no known cause and a cure is desperately needed.”

“Writing letters to elected officials about multiple system atrophy is a wonderful way to spread awareness and to help ensure our lawmakers keep rare disease research in mind as they pass legislation,” continues Mrs. Biedenharn, whose husband Ned passed away from MSA 10 years ago. “In order to encourage a large number of letters from the MSA community, The MSA Coalition is leveraging online tools available through the Rare Disease Legislative
'/>"/>

Source: PRWeb
Copyright©2012 Vocus, Inc.
All rights reserved

Page: 1 2 3 4

Related biology technology :

1. US Radiopharmaceuticals (USR) Awards Contract to Von Gahlen International for New Technetium-99m Generator Production Line Using Low Enriched Uranium Molybdenum-99
2. National Brain Tumor Society Announces Launch of Defeat GBM Research Collaborative
3. Atlantica Group LLC to Support International "Soft-Landing" Efforts of Incubators and Accelerators
4. TaxOps Announces Partner Appointment to Prominent International Position with Fortune 100 Company
5. SRI International Licenses Bed Bug Detection Technology to Redcoat, a Virginia-Based Start-Up Company
6. Alliance to Feed the Future Congratulates Our Farmers, Supports Education for Future Generations on National Agriculture Day
7. SOTIO a.s. Appoints Chiltern International
8. American Farmer Recognizes and Celebrates National Agriculture Day
9. Regeneron Pharmaceuticals’ Industrial Operations & Product Supply Site Receives International Recognition for Operational Excellence
10. Pi Day is coming March 14! National Pi Day Celebrates Education and its Importance in All Our Lives
11. La Société Internationale dUrologie lanza la SIU Academy, un nuevo recurso para urólogos
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:1/15/2014)... January 15, 2014 This webinar ... on nonclinical and clinical safety assessment in biosimilars. ... guide a path for biosimilar drug development, however ... of biosimilarity with regards to quality, safety and ... of biosimilar drug development and registration, development strategies ...
(Date:1/15/2014)... NC (PRWEB) January 15, 2014 ... an enhancement to its Online Web Portal for Life ... now have the ability to specify the subject matter ... nearly 50 life science sub-domains. This will help reduce ... and scientific fields, and decrease the likelihood of error. ...
(Date:1/14/2014)... Doylestown, PA (PRWEB) January 14, 2014 ... – 11 p.m. , Location: Warrington Country Club, 1360 ... Hepatitis B Foundation, the only national nonprofit organization solely ... improving the quality of life for those affected worldwide, ... 11 at Warrington Country Club in Warrington, Pa. ...
(Date:1/14/2014)... York, NY (PRWEB) January 14, 2014 ... initiated coverage of Alliqua, Inc. (OTCQB: ALQA). Alliqua ... and marketing proprietary products to serve the wound ... , In late 2012, Alliqua was restructured ... launched the company’s new strategy to become a ...
Breaking Biology Technology:Xtalks Life Sciences Webinar Examines Safety Assessment of Biosimilars 2DTS Improves Efficiency for Life Science Document Translations 2Hepatitis B Foundation to Host Annual Crystal Ball Gala 2EquitiesIQ Initiates Coverage of Alliqua, Inc. 2EquitiesIQ Initiates Coverage of Alliqua, Inc. 3
... , , , , , , , ... , , 1691112, 100 g, ... Package Inserts/Product , Instructions , , German , ... version - 54 K , , US Material Safety , ...
... , , , Catalog Number, ... 1691104, Set, , , , ... , English , version - 24 K , ... US Material Safety , Data Sheets , , ...
... Here are some troubleshooting hints that we have gathered , regarding misincorporation or low fidelity of PCR reactions: , , ... , , , ... , <a , ... , , <a , ...
Cached Biology Technology:Trouble-shooting: Misincorporation or low fidelity 2Trouble-shooting: Misincorporation or low fidelity 3
(Date:4/15/2014)... University of Missouri researchers have previously shown that ... to exercise exists. In a new study, Frank Booth, ... has found a potential link between the genetic pre-disposition ... at which mental maturation occurs. , For his study, ... extreme activity or extreme laziness. Booth then put the ...
(Date:4/15/2014)... The global experts who study the deadliest infectious ... Thomas G. Ksiazek, professors at the University of Texas ... 6th annual International Symposium on Filoviruses. The filoviruses include ... to 90 percent of people infected. The current outbreak ... more than 100 deaths so far. , "This ...
(Date:4/15/2014)... pastoral landscapes are some of the loveliest in the ... of the country,s pasture soils have become enriched in ... is then eaten by the cattle and sheep that ... Zealand; cadmium-enriched soils being reported worldwide. , The concern ... in meat and dairy products, human health and New ...
Breaking Biology News(10 mins):Genetic pre-disposition toward exercise and mental development may be linked 2International research group recognizes UTMB experts 2International research group recognizes UTMB experts 3
... Alzheimer,s is set to take a step forward following ... automated 3D microscopy. An initiative between the ... Institute for Cellular and Molecular Biology, the technology will ... as complex as nerve cells in the brain. ...
... is available in French . Vancouver, B.C. -- ... place at the wrong time. As a result of changing conditions, marine ... as three kilometres per year over the past 50 years, and forecasts ... years. Decisions on where to put MPAs weren,t always made with ...
... years, biologists have been amazed by the power of gecko ... roughly equivalent to carrying nine pounds up a wall without ... at the University of Massachusetts Amherst have discovered exactly how ... device that can hold 700 pounds on a smooth wall. ...
Cached Biology News:Marine protected areas: changing climate could require change of plans 2Inspired by gecko feet, UMass Amherst scientists invent super-adhesive material 2
... Combining linear motor and ballscrew ... pre-engineered Cartesian solutions that include ... management, and motors., , ... Pass through high-flex cabling for ...
UGT1A6 (D-20)...
... T Squareds patented high efficiency dynamic valve ... With the most compact, lightweight package in ... use in portable air and gas applications., ... high efficiency. , Includes DC Motor. ...
... designed for moving loads quickly and accurately. ... output while limiting overall size. The P5S-P ... ball bearings guided on two rails., ... provide energy absorption and controlled deceleration , ...
Biology Products: