Navigation Links
Malaysian Mountain Climbing Icon Ravi Everest Joins 9th Annual Expedition Mt. Kinabalu to Raise Awareness for Duchenne Muscular Dystrophy
Date:7/19/2019

World renowned two-time Everest summiter Ravichandran Tharumalingam, who is also known as “Ravi Everest,” will be joining forces with California-based charity Coalition Duchenne for its 9th Annual Expedition Mt. Kinabalu in Sabah, Malaysia, to be held from July 20-22nd. Coalition Duchenne raises awareness and funding for Duchenne muscular dystrophy and was founded by Sabahan Catherine Jayasuriya.

Jayasuriya, who lives in California, grew up in Kota Kinabalu and always dreamed of taking her children to the summit of its sentinel mountain. Her son, Dusty Brandom, has Duchenne and would never make the climb. At 26, Dusty is in a wheelchair and severely impacted by the muscle wasting disease. He travelled to Sabah in 2011 to visit his grandfather Tan Sri Thomas Jayasuriya but is now too physically impacted to make the long journey.

“Their bodies fail them but their mind and dreams are strong,” said Jayasuriya. “Dusty is my daily inspiration and he inspires everyone he knows as he overcomes personal adversity with a smile on his face. I climb for him.”

Dusty and the challenges faced by boys and young men with Duchenne have inspired Ravi Everest to become involved with the cause. His global ambitions match Coalition Duchenne’s goal of raising global awareness about Duchenne. Ravi Everest has climbed mountains all over the world proudly flying the Malaysian flag. He is currently working on the “Seven Summits Challenge,” which is a quest to climb the highest mountains on each continent, as well as the “Eight Thousander” challenge of climbing all 14 mountains over 8,000 meters. To top it all he is committed to achieving the “Grand Slam,” which adds the North Pole and the South Pole to the Seven Summits.

Ravi Everest has successfully conquered Mt. Everest twice, once in 2006 and again in 2007. Throughout his climbs he has endured many challenges, such as near-death in an avalanche on Mt. Manaslu, in Nepal in 2012, and losing eight fingers to frostbite on Everest in 2006. Despite these challenges, he continues to push himself to climb the most challenging mountains and inspire others. As a motivational speaker, Ravi wishes to inspire everyone to achieve the summit of their dreams.

Jayasuriya believes strongly in acting locally but thinking globally. She is an advocate for Malaysian patients to have access to drugs for Duchenne currently being developed in the US and Europe.

“Boys and young men with Duchenne in this region need a voice and access to new drugs,” said Catherine.

Validating Jayasuriya’s advocacy, a pioneering Duchenne clinical trial is recruiting patients at two sites in Malaysia. PTC Therapeutics, a US-based biopharmaceutical company, is the sponsor of the clinical trial. Investigators are looking for boys with Duchenne aged five and above who still have the ability to walk. The study examines whether the PTC drug ataluren can delay Duchenne progression and maintain patients’ ability to walk, run, and climb up and down stairs over a period of 144 weeks. The safety of ataluren is also being assessed.

The Principal Investigators at the two clinical trial sites in Malaysia are Teik Beng Khoo, MD at Kuala Lumpur Hospital, and Meow Keong Thong, MD at University Malaya Medical Centre.

It is hoped that the results of this trial will drive better understanding of Duchenne and its treatment, and ultimately benefit future patients.

Dusty and his 93-year-old grandfather, Tan Sri Thomas Jayasuriya, are featured in Catherine Jayasuriya’s award-winning film Dusty’s Trail: Summit of Borneo. The film is the story of Dusty’s journey with Duchenne, and it tells about people coming together from around the world to climb Mt. Kinabalu to raise awareness. Dusty’s Trail has an important message of hope in the face of adversity, and shows the beauty of Sabah and its people to the world.

“I’m inspired by the determination of boys and young men with Duchenne like Dusty,” said Ravi Everest.

Read the full story at https://www.prweb.com/releases/malaysian_mountain_climbing_icon_ravi_everest_joins_9th_annual_expedition_mt_kinabalu_to_raise_awareness_for_duchenne_muscular_dystrophy/prweb16449440.htm.


'/>"/>
Source: PRWeb
Copyright©2019 Vocus, Inc.
All rights reserved


Related biology technology :

1. 2013 Bio Convention Provides Springboard For Malaysian Biotech
2. Rocky Mountain Biologicals Expands Custom Serum Filtration Facility
3. White Mountain Process Announces Sanitary Autoclave Style Pharmaceutical Agitator
4. Newborn Calf Serum Added to Growing Product Suite of Rocky Mountain Biologicals
5. Rocky Mountain Biologicals Joins International Serum Industry Association
6. Medical Manufacturing to Mountaineering: KMC Employees Take it to the Top
7. San Antonio Investigators Report on Mountain Cedar Allergy Model
8. White Mountain Process' New Whisper Technology Creates World's Only Squeal-less Mechanical Seal
9. Convoy Therapeutics to Present at 2013 Rocky Mountain Life Science Investor and Partnering Conference
10. EnduRx Pharmaceuticals to Present at 2013 Rocky Mountain Life Science Investor and Partnering Conference
11. Rocky Mountain Biologicals CEO Selected to Participate in the 2013 Montana Economic Development Conference in Butte
Post Your Comments:
*Name:
*Comment:
*Email:
(Date:9/24/2019)... ... September 24, 2019 , ... Drug resistance has been declared as one of ... MRSA becoming one of the most serious concerns. Hong Kong cannot be spared from ... MRSA (CA-MRSA), or a seven-fold of the figure in 2007 – the year the ...
(Date:9/24/2019)... ... September 24, 2019 , ... ... Holscher, PhD, RD, to its Scientific Advisory Board. Dr. Holscher is an Assistant ... the Division of Nutritional Sciences at the University of Illinois Urbana-Champaign, where she ...
(Date:9/17/2019)... ... 17, 2019 , ... Catalent, a global leader in clinical ... Asia Pacific (APAC) will present at the upcoming 3rd Annual Accelerating Clinical Trials ... On Thursday, Sept. 26, at 10:10 a.m., Ms. Delaney will present “Singapore: APAC’s ...
(Date:9/17/2019)... (PRWEB) , ... September 17, 2019 , ... Jennifer ... Greenberg Traurig, LLP , have been named to Law360’s 2019 Rising Stars. Hermansky and ... recognized among 175 attorneys from 1,300 submissions, spanning 39 practice areas. The list highlights ...
Breaking Biology Technology:
(Date:9/25/2019)... (PRWEB) , ... September 25, 2019 , ... ... biopharma leaders through off-the-record collaboration and dialogue, today announces its inaugural South ... Orleans BioInnovation Center in Louisiana. , Co-produced by Tulane University, this invitation-only ...
(Date:9/24/2019)... ... September 24, 2019 , ... HT Medical today ... spinal implants with the expansion of its proprietary Ti3D® spinal interbody cages. Through ... number of cervical and lumbar instrumentation sets available for surgical use. , The ...
(Date:9/22/2019)... ... September 20, 2019 , ... ... adjusting to client demands for precision medicine products. The report, Lab Instrumentation ... billion in 2018, the pharma/bio sector is the largest source of demand for ...
Breaking Biology News(10 mins):