Blake's stepfather Jeremy Jaeger, who accompanied him to Beijing said, "Stem cells in America can be very political, but I really don't understand or even care so much about that. My only concern is in providing the absolute best care in the world for Blake and ensuring he gets what he deserves. Everyone in China was so great to us and we are really glad we went."
Blake's mother Dawn, who remained in California for the two months of Blake's stem cell therapy in Beijing, was amazed to see distinct improvements upon his return. Since Blake's return to California, she reports that his hands are unclenched and are no longer spastic. Blake now has his grip back and is clapping his hands. As well, after the treatment, Blake is holding his head up about 90% of the time compared with only 40% before. Cognitively Blake has also become more alert and is smiling more often, while attempting much more communication with his mother and father.
More on Blake's improvements after his return from china can be found on his blog at: http://www.blakespurpose.org .
Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses, or NCLs. Due to a genetic defect at birth, over time those with NCL suffer progressive nervous system breakdown leading to mental impairment, worsening seizures, increasing loss of sight and motor skills until shortly before death they become blind, bedridden, suffer dementia, and are incommunicable. Although Batten Disease is usually regarded as the juvenile form of NCL, it has now become the term to encompass all forms of NCL.
Blake suffers from Late Infantile NCL, (Jansky-Bielschowsky Disease),
which begins between
|SOURCE Tiantan Puhua Hospital Stem Cells Center|
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