Navigation Links
MSU engages public on using newborn blood spots for research
Date:9/21/2011

EAST LANSING, Mich. With millions of newborns' blood samples stored in a Michigan bio-bank, researchers are working to determine public attitudes toward the practice of using the blood spots for medical research.

The Michigan State University study will help drive public policy decisions and develop an improved consent process for the state's bio-bank, known as the Michigan BioTrust, said Ann Mongoven, an assistant professor in MSU's Center for Ethics and the Humanities in the Life Sciences.

The project is funded by a five-year, $1.1 million grant from the National Institutes of Health. The MSU grant is part of a larger research project led by Sharon Kardia at the University of Michigan. The Michigan BioTrust's Community Values Advisory Board is collaborating with researchers.

Michigan's bio-bank is a tissue repository of bloodspots left over from Michigan's newborn screening program, which tests all babies for genetic and metabolic abnormalities. While the bio-bank offers public health research opportunities, it also presents ethical challenges, said Mongoven, who also has an appointment with the Department of Pediatrics and Human Development.

The new study aims to develop, implement and evaluate a new model of community engagement to help guide the ethical and policy questions that arise when using blood stored in the bio-bank for research.

"The Michigan Biotrust initiative raises serious issues for both individual research participants and for communities," she said.

Those include: Is it acceptable to use someone's blood in research without that person's knowledge and consent? If research is done on de-identified human tissue, should the donor be considered a research subject? How can one truly 'consent' for as yet unknown future research? What should be done if research reveals information that could be clinically useful to a specific research subject? Could groups as well as individuals be affected by population research? How should resource priorities be determined when the use of precious community resources is at stake?

"These issues have drawn much public attention to the ethics of public health biobanking," Mongoven said, "without the proper research into public attitudes."

Lawsuits and citizen campaigns have limited research on neonatal bloodspots in both Minnesota and Texas after parents learned the state had saved children's bloodspots and were using them for research. Public health officials express concern that such negative attention could decrease support for clinical newborn screening as well as for research, putting newborns with serious medical conditions at risk.

While Michigan's state government has fostered greater transparency by creating a Community Values Board to develop ethical guidelines, Mongoven said, many in the public do not know the state saves bloodspots.

"The state faces challenging questions about how to notify the public of the blood samples' existence and of citizens' option to 'opt out' of having their blood used in research," she said. "There are tensions between treating the blood as a community resource or as private property. What the MSU research reveals will inform efforts to meet those challenges."

Mongoven is working on the project with Stephen Lovejoy, associate director with MSU Extension. Across the state, educators from MSU Extension will facilitate regional conversations with the public, helping to connect with communities and to collect data and input.

In addition to Mongoven's study, MSU's Tom Tomlinson, director of the Center for Ethics and the Humanities in the Life Sciences, is leading a bio-banking project that will help define the nature and strength of public attitudes regarding the state bio-bank and its research uses. The study also will consider the best ways to protect the public's interest.


'/>"/>

Contact: Jason Cody
codyja@msu.edu
517-432-0924
Michigan State University
Source:Eurekalert  

Related biology news :

1. Office of Naval Research engages international partners at OCEANS 2011
2. Communication engages complex brain circuitry and processes
3. Smithsonian Libraries converts digital publications for e-readers
4. Public prefers limited informed consent process for biobanks
5. Scripps Research Institute Scientist Knighted by Italian Republic
6. Grant funds science career days for Philadelphia public school students
7. Public and private sectors unite to make more of brewing by-products
8. Democrats and Republicans increasingly divided over global warming
9. Public forum: Japan and early lessons for the nuclear industry
10. Zimmerman receives Richard King Trainee Award for best publication in genetics in medicine
11. Science reporter wins ASM Public Communications Award
Post Your Comments:
*Name:
*Comment:
*Email:
Related Image:
MSU engages public on using newborn blood spots for research
(Date:4/28/2016)... and BANGALORE, India , April 28, 2016 ... a product subsidiary of Infosys (NYSE: INFY ), ... a global partnership that will provide end customers ... mobile banking and payment services.      (Logo: ... innovation area for financial services, but it also plays a ...
(Date:4/19/2016)... 2016 The new GEZE SecuLogic ... web-based "all-in-one" system solution for all door components. It ... the door interface with integration authorization management system, and ... The minimal dimensions of the access control and the ... installations offer considerable freedom of design with regard to ...
(Date:4/13/2016)... 13, 2016  IMPOWER physicians supporting Medicaid patients in ... new clinical standard in telehealth thanks to a new ... higi platform, IMPOWER patients can routinely track key health ... mass index, and, when they opt in, share them ... to a local retail location at no cost. By ...
Breaking Biology News(10 mins):
(Date:5/23/2016)... , May 23, 2016 Zimmer Biomet Holdings, ... healthcare, today announced that its Board of Directors has approved ... the second quarter of 2016. The cash ... about July 29, 2016 to stockholders of record as of ... of dividends are subject to approval of the Board of ...
(Date:5/22/2016)... Raleigh, NC (PRWEB) , ... May 22, 2016 , ... ... powerful weapons in combating the asbestos cancer, malignant mesothelioma. Surviving Mesothelioma has just posted ... , Researchers in the University of Rome’s Department of Clinical Sciences and Translational Medicine ...
(Date:5/19/2016)... Virginia (PRWEB) , ... May 19, 2016 , ... Anton ... new 30,000 square foot office building is complete. The new structure adds a third ... 2011, Anton Paar USA purchased 2.4 acres of land, along with office ...
(Date:5/19/2016)... MADRID , May 19, 2016 ... di una sessione orale durante il 52 ° ... (abstract n. 8006)    - Le conclusioni ... quanto riguarda i pazienti trattati, di cui il 90% presenta ... di sei mesi o più. Il settantadue per cento dei ...
Breaking Biology Technology: